We want the voices of children, young people and parents/carers to be at the heart of what we do. The engagement team work with patients and families to make sure that their opinions are used to inform how we improve care.
There are many ways that your involvement at Evelina London can have an impact. From helping us improve our services to training and recruiting staff, and creating resources for patients and families such as books, leaflets and films.
How can I get involved?
Some of the ways you can get involved include:
- patient forums
- parent/carers forums
- creative workshops
- social media and web surveys
Simply drop us an email, or give us a call, and we can tell you about upcoming events, and add you to our mailing list.
We are interested in everyone's ideas, no matter how big or small they are. If you have an idea of how you can get involved, we would love to hear from you.
In August 2016, we held the first ever youth engagement conference at Evelina London. The event celebrated the many wonderful ways young people have been actively involved in changing the healthcare they receive, from writing patient information books to setting up focus groups to help improve the transition from child to adult care.
The conference was attended by over 50 young people, and by parents and healthcare staff. Young people who attended were inspired to develop their own projects, including a young person’s newsletter and a youth forum.
In November 2016 we held our first parents forum. It was a chance for parents and staff to meet and discuss how we can involve families in improving our services.
We heard some great ideas and, following the forum, parents have been involved in a variety of projects including developing a sibling’s policy to help support our patients’ brothers and sisters.
Our patients and parents have helped to create and improve resources for families. Examples of this include two of our young people writing and producing a pacemaker manual specifically for young people, and a fun, educational booklet on gastroenterological issues to help support parents of children under our care.