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Evelina-led study published into real-world use of Zolgensma

Description: A study led by Evelina London provides important information about Zolgensma's use in real-world clinical settings for children with type 1 SMA.

Study findings on treatment for paediatric inflammatory multisystem syndrome (PIMS) published

Description: A study has published its findings into treatment for paediatric multisystem inflammatory syndrome (PIMS) associated with COVID-19.

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You could also try: issue (129), print (19), distribute (2), circulate (5), announce (13), broadcast (3)

Prednisolone

Description: Information about your child taking prednisolone.
Url: /resources/patient-information/prednisolone.pdf

Nutrition in Cockayne syndrome

Description: Nutritional advice for patients with Cockayne syndrome
Url: /resources/patient-information/nutrition-in-cockayne-syndrome.pdf

LHRH test

Description: Information about your child's Luteinising Hormone Releasing Hormone (LHRH) test.
Url: /resources/patient-information/lhrh-test.pdf

Immunotherapy with Alutard

Description: Information about wasp or bee immunotherapy.
Url: /resources/patient-information/immunotherapy-with-Alutard-web.pdf

Admission information for operation or planned tests

Description: Information that will help you to feel more ready for your child's operation or planned test.
Url: /resources/patient-information/admission-info-for-op-or-tests.pdf

Feeding and swallowing difficulties in children with heart conditions

Description: This leaflet explains the feeding and swallowing difficulties your child may experiencewith their heart condition
Url: /resources/patient-information/feeding-and-swallowing-difficulties-in-children-with-heart-conditions.pdf

Cardiac MRI scan

Description: This leaflet aims to answer your questions about your child's cardiac MRI scan. It explains the benefits, risks, and alternatives, as
Url: /resources/patient-information/cardiac-mri-scan.pdf

Prenatal diagnosis of CHD

Description: This leaflet gives more information about your baby's heart disease.
Url: /resources/patient-information/prenatal-diagnosis-of-CHD.pdf

Caring for your child's orthopaedic wound at home

Description: Information about how to care for orthopaedic wounds at home.
Url: /resources/patient-information/caring-for-your-childs-orthopaedic-wound-at-home-web.pdf

Short Synacthen test

Description: Information about your child's short Synacthen® test (SST).
Url: /resources/patient-information/short-Synacthen-test.pdf

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