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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Orthopaedic procedure recovery

Description: Advice for recovering from orthopaedic procedures.
Url: /resources/patient-information/orthopaedic-procedure-recovery.pdf

Gastrostomy surgery to replace a feeding tube with a button

Description: Information about having gastrostomy surgery to replace a feeding tube with a button.
Url: /resources/patient-information/gastrostomy-surgery-to-replace-a-feeding-tube-with-a-button.pdf

Congenital megaprepuce repair (buried penis)

Description: Information about having surgery to repair your congenital megaprepuce.
Url: /resources/patient-information/congenital-megaprepuce-repair-buried-penis.pdf

orchidopexy for an undescended testicle

Description: Information about orchidopexy surgery for an undescended testicle.
Url: /resources/patient-information/orchidopexy-for-an-undescended-testicle.pdf

orchidopexy for a testicle that cannot be felt

Description: Information about having orchidopexy surgery for a testicle that cannot be felt.
Url: /resources/patient-information/orchidopexy-for-a-testicle-that-cannot-be-felt.pdf

Hypospadias repair - 1-stage

Description: Information about having a hypospadias repair in 1 stage.
Url: /resources/patient-information/hypospadias-repair-1-stage.pdf

Asthma health pack

Description: Asthma Health support pack | | WWW.CYPHP.ORG CYPHP ASTHMA 1 ASTHMA | 2 This pack has been created by a team of children’s health
Url: /resources/our-services/community/community-nursing/Asthma-health-pack.pdf

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