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Evelina-led study published into real-world use of Zolgensma

Description: A study led by Evelina London provides important information about Zolgensma's use in real-world clinical settings for children with type 1 SMA.

Study findings on treatment for paediatric inflammatory multisystem syndrome (PIMS) published

Description: A study has published its findings into treatment for paediatric multisystem inflammatory syndrome (PIMS) associated with COVID-19.

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You could also try: issue (129), print (19), distribute (2), circulate (5), announce (13), broadcast (3)

Transcranial Doppler scanning

Description: This leaflet aims to give you an overview of transcranial Doppler scanning, including what it is, why your child may need
Url: /resources/patient-information/transcranial-doppler-scanning.pdf

Sickle cell psychology service

Description: This leaflet is about psychological support to children and young people who are living with sickle cell disease (SCD) and thalassaemia
Url: /resources/patient-information/sickle-cell-psychology-service.pdf

Information about your Desferal infusors (pump)

Description: This leaflet provides you with information about using your Desferal infusors.
Url: /resources/patient-information/information-about-your-desferal-infusors-(pump).pdf

Bedwetting (enuresis) in children with sickle cell disease

Description: Information about bedwetting in children with sickle cell disease (SCD), including why it's more common for children with SCD, and what
Url: /resources/patient-information/bedwetting-enuresis-in-children-with-sickle-cell-disease.pdf

Antibiotics, vaccinations and travel advice for your child with sickle cell disease

Description: This leaflet provides help and advice for parents regarding antibiotics, vaccinations and travel for children with sickle cell disease.
Url: /resources/patient-information/antibiotics-vaccinations-and-travel-advice-for-your-child-with-sickle-cell-disease.pdf

Functional abdominal pain disorders

Description: Information about functional abdominal pain disorders (FAPD) and the treatments that can help.
Url: /resources/patient-information/functional-abdominal-pain-disorders.pdf

Wheelchair hire in London

Description: This leaflet gives advice about measuring for a wheelchair and where you can hire them from in London.
Url: /resources/patient-information/wheelchair-hire-in-London.pdf

Paediatric outpatient parenteral antibiotic therapy (p-OPAT) service

Description: Information about the paediatric outpatient parenteral antibiotic therapy (p-OPAT) service. It explains how the service works and what to do
Url: /resources/patient-information/p-opat-service.pdf

Your child's ankle foot orthosis

Description: Information about your child's ankle foot orthosis, which supports their ankle and foot.
Url: /resources/patient-information/your-childs-ankle-foot-orthosis.pdf

Videofluoroscopy (inpatients)

Description: Information about having a videofluoroscopy as an inpatient.
Url: /resources/patient-information/Videofluoroscopy-inpatient.pdf

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