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Evelina-led study published into real-world use of Zolgensma

Description: A study led by Evelina London provides important information about Zolgensma's use in real-world clinical settings for children with type 1 SMA.

Study findings on treatment for paediatric inflammatory multisystem syndrome (PIMS) published

Description: A study has published its findings into treatment for paediatric multisystem inflammatory syndrome (PIMS) associated with COVID-19.

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You could also try: issue (129), print (19), distribute (2), circulate (5), announce (13), broadcast (3)

MRI scan - your child's scan

Description: Information about your child's scan. It explains the benefits, risks and alternatives.
Url: /resources/patient-information/your-childs-mri.pdf

Sickle cell and thalassaemia service for babies, children and young people

Description: This leaflet provides information on the specialist and comprehensive care service for children and adolescents in Sout East London who are
Url: /resources/patient-information/sickle-cell-and-thalassaemia-service-for-babies-children-and-young-people.pdf

Care and management of an external fixator frame

Description: Information about fixator frames and how to look after them.
Url: /resources/patient-information/Care-and-management-of-an-external-fixator-frame.pdf

Stoma care – your child and their stoma

Description: The aim of this information sheet is to answer some of the questions you may have about your child's stoma.
Url: /resources/patient-information/your-child-and-their-stoma.pdf

Rectal washouts

Description: This leaflet aims to teach parents how to perform rectal washouts safely on their baby at home. It explains the reasons
Url: /resources/patient-information/rectal-washouts.pdf

Your rhinitis management plan

Description: This leaflet helps you log important information about your management plan for rhinitis.
Url: /resources/patient-information/your-rhinitis-management-plan-web.pdf

Your immunotherapy plan - Oraltek

Description: This leaflet gives information about using Oraltek for rhinitis.
Url: /resources/patient-information/your-immunotherapy-plan-Oraltek-web.pdf

Gastroschisis and exomphalos

Description: Information about gastroschisis and exomphalos.
Url: /resources/patient-information/gastroschisis-and-exomphalos.pdf

Thalassaemia

Description: Information about Thalassemia disease
Url: /resources/patient-information/thalassaemia.pdf

Priapism (painful erection) associated with sickle cell disease

Description: This leaflet is for parents and carers of children and young people with priapism. It contains answers to common questions about
Url: /resources/patient-information/priapism-associated-with-sickle-cell-disease.pdf

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