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Evelina-led study published into real-world use of Zolgensma

Description: A study led by Evelina London provides important information about Zolgensma's use in real-world clinical settings for children with type 1 SMA.

Study findings on treatment for paediatric inflammatory multisystem syndrome (PIMS) published

Description: A study has published its findings into treatment for paediatric multisystem inflammatory syndrome (PIMS) associated with COVID-19.

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You could also try: issue (129), print (19), distribute (2), circulate (5), announce (13), broadcast (3)

Hydroxycarbamide for children with sickle cell disease

Description: Information for families about the medication hydroxycarbamide.
Url: /resources/patient-information/hydroxycarbamide.pdf

Having an exchange blood transfusion - Information for parents or carers of a child with sickle cell disease

Description: Information leaflet for parents and carers about their child having an exchange blood transfusion.
Url: /resources/patient-information/exchange-transfusion-information-for-parents.pdf

Having a simple (top-up) blood transfusion - Information for parents or carers of a child with sickle cell disease

Description: Information leaflet for parents and carers about their child having a simple (top-up) blood transfusion.
Url: /resources/patient-information/simple-top-up-transfusion-information-for-parents.pdf

Bone marrow transplant for sickle cell disease

Description: This leaflet explains about bone marrow transplant for children and young people with sickle cell disease.
Url: /resources/patient-information/BMT-for-sickle-cell-disease-web-friendly.pdf

Video urodynamics

Description: Information to help prepare for your child's video urodynamic testing.
Url: /resources/patient-information/video-urodynamics.pdf

Talking to children and young people about their health condition

Description: Guidance to help parents or carers talk to children and young people about their health condition and treatment.
Url: /resources/patient-information/talking-to-children-and-young-people-about-their-health-condition.pdf

Staying safe - information for parents

Description: Information to help parents who think their child might be thinking about suicide or self-harming.
Url: /resources/patient-information/staying-safe-information-for-parents.pdf

Staying safe

Description: Information for children who might be having thoughts about suicide or self-harming, including helpline numbers.
Url: /resources/patient-information/staying-safe.pdf

Looking after yourself

Description: Information about psychological wellbeing for children living with a physical health condition, including strategies to help with coping.
Url: /resources/patient-information/looking-after-yourself.pdf

Emotional support during or after your child's hospital stay for an asthma attack

Description: Information about how the paediatric respiratory psychology service can give a family emotional support during or after a child's hospital stay
Url: /resources/patient-information/emotional-support-during-or-after-your-childs-hospital-stay-for-an-asthma-attack.pdf

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