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“disease”

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An egg-stra special Easter party for children with rare diseases

Description
Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description
Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First trial of its kind for pregnant women with sickle cell disease

Description
Guy's and St Thomas' has assessed the health benefits for pregnant women with sickle cell disease having regular blood transfusions in new trial.

New research explores brain growth in unborn babies with congenital heart disease

Description
Researchers from King's College London and Evelina London have found that congenital heart disease can affect the brain development of unborn babies.

Study reveals genetic link between childhood brain disorder and Parkinson's disease

Description
Research into a rare neurodevelopment condition has provided important insights into a more common age-related disorder.

Study sheds new light on severe infections and inflammatory diseases in children

Description
Around 100 children who were treated in Evelina London Children’s Hospital's paediatric intensive care unit were involved in this important study.

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Suspected NSAID and paracetamol allergy investigation

Description
Information about non-steroidal anti-inflammatory drugs (NSAIDs) and how we investigate a possible allergy to them.
Url
/resources/patient-information/suspected-NSAID-and-paracetamol-allergy-investigation.pdf

Support for pregnant Black women

Description
As part of Black History Month we want to highlight how we are improving outcomes for pregnant black women through our
Url
/about-us/news-events/2022-news/20221010-support-for-pregnant-black-women.aspx

Father cycles 1,000 miles to thank Evelina London for saving his daughter's life

Description
A father has cycled almost 1,000 miles to thank the team who cared for his teenage daughter when she became
Url
/about-us/news-events/2022-news/20220812-father-cycles-1000-miles-evelina-london.aspx

Evelina London experts highlight symptoms of rare COVID-19 infection

Description
Experts at Evelina London are raising awareness of the rare inflammatory condition in children and young people linked to COVID-19
Url
/about-us/news-events/2022-news/20220223-evelina-london-rare-covid-19-infection.aspx

What do you do, Michael?

Description
Michael is a PIMS-TS clinical nurse specialist
Url
/about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-michael.aspx

Remarkable Rory inspires his mum to run the London Marathon

Description
Inspired by her son, a mum-of-two has completed the London Marathon to thank Evelina London.
Url
/about-us/news-events/2021-news/20211027-remarkable-rory-inspires-marathon.aspx

New Snow Fox ward provides a bright and colourful space for planned care

Description
Evelina London has opened a new ward designed specifically for children and young people who need planned care.
Url
/about-us/news-events/2019-news/2019012017-snow-fox-ward-offers-new-benefits-for-our-patients.aspx

Fetal and neonatal imaging programmes

Description
Building a better understanding of how a baby's heart and brain develop, before and after birth through research.
Url
/resources/patient-information/fetal-and-neonatal-imaging-programmes.pdf

Nurse training

Description
Information about nurse training and student nurse placements at Evelina London.
Url
/health-professionals/education/nurse-training.aspx

Nutrition in Cockayne syndrome

Description
Nutritional advice for patients with Cockayne syndrome
Url
/resources/patient-information/nutrition-in-cockayne-syndrome.pdf
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