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“disease”

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An egg-stra special Easter party for children with rare diseases

Description
Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description
Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First trial of its kind for pregnant women with sickle cell disease

Description
Guy's and St Thomas' has assessed the health benefits for pregnant women with sickle cell disease having regular blood transfusions in new trial.

New research explores brain growth in unborn babies with congenital heart disease

Description
Researchers from King's College London and Evelina London have found that congenital heart disease can affect the brain development of unborn babies.

Study reveals genetic link between childhood brain disorder and Parkinson's disease

Description
Research into a rare neurodevelopment condition has provided important insights into a more common age-related disorder.

Study sheds new light on severe infections and inflammatory diseases in children

Description
Around 100 children who were treated in Evelina London Children’s Hospital's paediatric intensive care unit were involved in this important study.

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What do you do, Sharon?

Description
Sharon is the Lead Midwife for the recently established Southeast London Maternal Medicine Network (MMN)
Url
/about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-sharon.aspx

Feelings and fears

Description
At Evelina London, we'll do our best to help you feel at home.
Url
/young-people/feelings-and-fears.aspx

Cyril's reflections

Description
Sir Cyril Chantler reflects on his career and how accommodation for families has improved at Evelina London.
Url
/about-us/who-we-are/history/a-history-of-care/reflections/cyrils-reflections.aspx

Food challenges and supervised feeds

Description
Food challenges and supervised feeds are tests that are performed in hospital to see if your child is allergic to anything
Url
/resources/patient-information/food-challenges-and-supervised-feeds.pdf

Nutrition in trichothiodystrophy

Description
Nutritional advice for patients with trichothiodystrophy.
Url
/resources/patient-information/nutrition-in-trichothiodystrophy.pdf

Gastroscopy to check the digestive system

Description
Information about having a gastroscopy.
Url
/resources/patient-information/gastroscopy-to-check-the-digestive-system.pdf

Care and management of an external fixator frame

Description
Information about fixator frames and how to look after them.
Url
/resources/patient-information/Care-and-management-of-an-external-fixator-frame.pdf

Flexible bronchoscopy in children

Description
This leaflet explains what bronchoscopy is, why it may be necessary and what you can expect if your child has this
Url
/resources/patient-information/flexible-bronchoscopy-in-children.pdf

What do you do, Cherese and Morenike?

Description
Cherese and Morenike are midwives
Url
/about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-morenike-and-cherese.aspx

What do you do, Elsa?

Description
Elsa is a antenatal and newborn screening coordinator
Url
/about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-elsa.aspx
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