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Givinostat Early Access Programme

Description: Information about the Givinostat Early Access Programme at Evelina London, for children with Duchenne muscular dystrophy (MDM).
Url: /resources/patient-information/givinostat-early-access-programme.pdf

Having an exchange blood transfusion - Information for parents or carers of a child with sickle cell disease

Description: Information leaflet for parents and carers about their child having an exchange blood transfusion.
Url: /resources/patient-information/exchange-transfusion-information-for-parents.pdf

Talking to children and young people about their health condition

Description: Guidance to help parents or carers talk to children and young people about their health condition and treatment.
Url: /resources/patient-information/talking-to-children-and-young-people-about-their-health-condition.pdf

Emotional support during or after your child's hospital stay for an asthma attack

Description: Information about how the paediatric respiratory psychology service can give a family emotional support during or after a child's hospital stay
Url: /resources/patient-information/emotional-support-during-or-after-your-childs-hospital-stay-for-an-asthma-attack.pdf

Emotional support during or after your child's hospital stay

Description: Information about how the paediatric psychology service can give families emotional support during or after a child's hospital stay.
Url: /resources/patient-information/emotional-support-during-or-after-your-childs-hospital-stay.pdf

Speech and language advice after your baby's cleft operation

Description: This leaflet explains why speech and language therapy is very important after a baby's surgery, and gives advice and tips on
Url: /resources/patient-information/speech-and-language-advice-after-your-babys-cleft-operation.pdf

About your child's cleft lip or vomer flap surgery

Description: Information about your child's cleft lip or vomer flap surgery including what you will need to do before the operation and
Url: /resources/patient-information/about-your-childs-cleft-lip-or-vomer-flap-surgery.pdf

Jaw (orthognathic) surgery

Description: This leaflet explains what jaw surgery involves, the risks and benefits, and any alternatives.
Url: /resources/patient-information/jaw-orthognathic-surgery.pdf

Transferring your child to a paediatric intensive care unit

Description: This leaflet describes what happens if your child is moved to an intensive care unit by the South Thames Retrieval Service
Url: /resources/patient-information/transferring-your-child-to-a-paediatric-intensive-care-unit.pdf

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