Evelina Hospital logo

Community sickle cell disease and thalassaemia – useful resources

This page lists leaflets and other useful resources used by our department.

Useful websites

Sickle Cell Society – charity providing help and support for people affected by sickle cell disorders and their carers.

NHS Sickle Cell and Thalassaemia Screening Programme – the website of this national screening programme includes information about sickle cell disease and thalassaemia and useful resources.

Patient information leaflets

Each leaflet is reviewed at least every three years to make sure it is kept up to date.

Antibiotics, vaccinations and travel advice for your child with sickle cell disease

Description
This leaflet provides help and advice for parents regarding antibiotics, vaccinations and travel for children with sickle cell disease

Bedwetting (enuresis) in children with sickle cell disease

Description
This leaflet offers more information about bedwetting in children with sickle cell disease (SCD), including why it is more common amongst children with SCD and what you can do to help.

Blood transfusion for children - blood samples required

Description
This information sheet answers some of the questions you may have about blood samples taken before a transfusion.

Bone marrow transplant for sickle cell disease

Description
This leaflet explains about bone marrow transplant for children and young people with sickle cell disease.

Having a simple (top-up) blood transfusion - Information for parents or carers of a child with sickle cell disease

Description
Information leaflet for parents and carers of children at Evelina London, St Thomas' Hospital, about their child having a simple (top-up) blood transfusion.

Having an exchange blood transfusion - Information for parents or carers of a child with sickle cell disease

Description
Information leaflet for parents and carers of children at Evelina London, St Thomas' Hospital, about their child having an exchange blood transfusion.

Health Psychology Service for adults and young people with sickle cell disease and thalassaemia

Description
This leaflet provides you with information about the health psychology service and how we can help you.

Hydroxycarbamide for children with sickle cell disease

Description
Information for families about the medication hydroxycarbamide.

Sickle cell and thalassaemia service for babies, children and young people.

Description
This leaflet provides information on the specialist and comprehensive care service for children and adolescents in Sout East London who are born with these inherited disorders.

Sickle cell transition service

Description
This leaflet explains more about the transition service for young people with sickle cell disease.

Transcranial Doppler scanning

Description
This leaflet aims to give you an overview of Transcranial Doppler scanning, including what it is, why your child may need it, and how it can help. It is designed for parents of children with sickle cell disease (SCD).

More patient information leaflets

For an A-Z list of all our patient information leaflets, please see the parents and visitors section.
©  Guy's and St Thomas' NHS Foundation Trust.
King's Health Partners logo