Strike action is taking place across our services from Saturday 24 February to Wednesday 28 February. We'll contact your directly if your or your child's care is affected. We're sorry for any distress that delays to your care may cause.

Sickle cell and thalassaemia patient information leaflets

This page lists leaflets produced or used by our department. Each leaflet is reviewed at least every three years to make sure it is kept up to date.

Antibiotics, vaccinations and travel advice for your child with sickle cell disease

Description
This leaflet provides help and advice for parents regarding antibiotics, vaccinations and travel for children with sickle cell disease.

Bedwetting (enuresis) in children with sickle cell disease

Description
This leaflet offers more information about bedwetting in children with sickle cell disease (SCD), including why it is more common amongst children with SCD and what you can do to help.

Bone marrow transplant for sickle cell disease

Description
This leaflet explains about bone marrow transplant for children and young people with sickle cell disease.

Having a simple (top-up) blood transfusion - Information for parents or carers of a child with sickle cell disease

Description
Information leaflet for parents and carers about their child having a simple (top-up) blood transfusion.

Having an exchange blood transfusion - Information for parents or carers of a child with sickle cell disease

Description
Information leaflet for parents and carers about their child having an exchange blood transfusion.

Hydroxycarbamide for children with sickle cell disease

Description
Information for families about the medication hydroxycarbamide.

Information about your Desferal infusors (pump)

Description
This leaflet provides you with information about using your Desferal infusors.

Managing pain in sickle cell disease web

Description
Information about helping a child with sickle cell disease to manage their pain

Priapism (painful erection) associated with sickle cell disease

Description
This leaflet is for parents and carers of children and young people with priapism. It contains answers to common questions about stuttering and acute priapism such as what can trigger it, how to manage it and when to seek medical help.

Sickle cell and thalassaemia service for babies, children and young people

Description
This leaflet provides information on the specialist and comprehensive care service for children and adolescents in Sout East London who are born with these inherited disorders.
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More patient information leaflets

For an A-Z list of all our patient information leaflets, please see the parents and visitors section.