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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Rare birthmark condition diagnosed by experts at Evelina London

Description: A family has thanked specialists at Evelina London for saving their daughter's life, after a rare birthmark was found to be
Url: /about-us/news-events/2022-news/20220530-rare-birthmark-condition-diagnosed-by-experts-at-Evelina-London.aspx

Evelina London develops first guidance for rare 'dancing eyes syndrome'

Description: Experts have published the first international guidance on this rare condition, deveoped in collaboration with clinicians and families worldwide.
Url: /about-us/news-events/2022-news/20220513-first-guidance-for-dancing-eyes-syndrome.aspx

Pioneering procedure on baby with rare swallowing condition

Description: A baby born with a rare condition that left him unable to swallow has undergone a pioneering procedure at Evelina London
Url: /about-us/news-events/2022-news/20221219-pioneering-procedure-baby.aspx

Rare heart procedure on Evelina London's smallest patient

Description: Parents, Jenny and Billy, ran the London Landmarks half marathon to raise money for our cardiology team after they treated their b
Url: /about-us/news-events/2022-news/20220426-evelina-londons-smallest-patient.aspx

Evelina London experts highlight symptoms of rare COVID-19 infection

Description: Experts at Evelina London are raising awareness of the rare inflammatory condition in children and young people linked to COVID-19
Url: /about-us/news-events/2022-news/20220223-evelina-london-rare-covid-19-infection.aspx

Evelina London appoints first dedicated nurse for rare COVID condition

Description: Our children's hospital has become one of the first in the UK to appoint a clinical nurse specialist for a rare inflamma
Url: /about-us/news-events/2022-news/20220404-evelina-london-first-dedicated-nurse-for-rare-COVID-condition.aspx

Mayor of London visits to talk clean air and rare condition linked to COVID-19

Description: The Mayor of London, Sadiq Khan, visited Evelina London to meet families and staff to talk about the impact of toxic
Url: /about-us/news-events/2022-news/20220302-mayor-visits-to-talk-clean-air-and-rare-condition.aspx

Evelina London experts call on families to be aware of symptoms of rare COVID-19 related condition

Description: Our large specialist children's hospital has played an important role over the last year in caring for a small nu
Url: /about-us/news-events/2021-news/20210204-symptoms-of-rare-covid-19-related-condition.aspx

General anaesthetic (for your child)

Description: This leaflet gives information about your child having a general anaesthetic.
Url: /resources/patient-information/your-childs-anaesthetic.pdf

Our research news

Description: Read recent news stories about our leading research.
Url: /research/research-news.aspx

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