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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Routine pregnancy tests before a planned operation/procedure

Description: This leaflet answers your questions about having a routine pregnancy test before your operation/procedure. It explains why itis necessary for
Url: /resources/patient-information/routine-pregnancy-tests-before-op.pdf

Entonox - using Entonox during your child's procedure

Description: Information about the use of Entonox during your child's procedure
Url: /resources/patient-information/using-Entonox-during-your-childs-procedure.pdf

Nosebleeds

Description: Information about nosebleeds and how they can be treated.
Url: /resources/patient-information/nosebleeds.pdf

You've got this blog

Description: Read amazing blogs written by our patients.
Url: /about-us/who-we-are/blog-entries/blog.aspx

Jaundice in newborn babies

Description: This leaflet explains what jaundice is and how it is treated in newborn babies.
Url: /resources/patient-information/Jaundice-in-newborn-babies.pdf

What do you do, Dean?

Description: Dean is a health play assistant at Evelina London
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-dean.aspx

What do you do, Poppy?

Description: Poppy is a children's community speech and language therapist at Evelina London
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-poppy.aspx

Who we are

Description: Evelina London Children's Hospital is part of Guy's and St Thomas' NHS Foundation Trust and is the second largest provider of
Url: /about-us/who-we-are/who-we-are.aspx

Felicity Gregson's blog

Description: Felicity Gregson's blog about her experience of Evelina London
Url: /about-us/who-we-are/blog-entries/20200311-felicity-blog.aspx

Miracle Mia becomes youngest competitor at British Transplant Games

Description: A three-year-old girl has celebrated her first anniversary of receiving a new kidney at Evelina London by becoming the
Url: /about-us/news-events/2019-news/20190827-miracle-mia.aspx

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