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“condition”

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Europe's first children's clinic for genetic condition

Description: Evelina London Children's Hospital has launched Europe's first multidisciplinary clinic for children with a rare condition.

Evelina London remains a Centre of Excellence for the treatment of muscle-wasting conditions

Description: Muscular Dystrophy UK has presented the Evelina London neuromuscular team with a Centre of Clinical Excellence award for a second time.

Major advance for detecting brain conditions in babies

Description: Experts at Evelina London Children's Hospital and King’s College London have made major advances in detecting brain conditions in babies.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

Supporting young people with inherited cardiac conditions

Description: A day of talks and workshops took place for young people aged 13-22 with inherited cardiac conditions to help them transition to adult services.

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Schoolgirl is the first in the UK to benefit from a pioneering kidney treatment

Description: An innovative treatment provided by Evelina London has cured a girl with a rare kidney disorder.
Url: /about-us/news-events/2019-news/20190103-pioneering-treatment-for-a-rare-kidney-condition.aspx

Reflections

Description: Our staff share their memories of working at Evelina London. Read about how their careers developed and the significant changes they
Url: /about-us/who-we-are/history/a-history-of-care/reflections/reflections.aspx

Baby's life saved after pioneering intensive care treatment

Description: The smallest baby in the UK to receive a pioneering life support treatment has celebrated her first birthday thanks to Evelina
Url: /about-us/news-events/2019-news/20191115-ecmo.aspx

Trigger finger or thumb surgery

Description: Information about surgery to release trigger finger or thumb.
Url: /resources/patient-information/trigger-finger-or-thumb-surgery.pdf

Givinostat Early Access Programme

Description: Information about the Givinostat Early Access Programme at Evelina London, for children with Duchenne muscular dystrophy (MDM).
Url: /resources/patient-information/givinostat-early-access-programme.pdf

Necrotising enterocolitis

Description: This leaflet explains about necrotising enterocolitis. It explains what it is, the symptoms of it, the diagnostic process, the treatments available
Url: /resources/patient-information/necrotising-enterocolitis.pdf

Functional abdominal pain disorders

Description: Information about functional abdominal pain disorders (FAPD) and the treatments that can help.
Url: /resources/patient-information/functional-abdominal-pain-disorders.pdf

Emotional support during or after your child's hospital stay for an asthma attack

Description: Information about how the paediatric respiratory psychology service can give a family emotional support during or after a child's hospital stay
Url: /resources/patient-information/emotional-support-during-or-after-your-childs-hospital-stay-for-an-asthma-attack.pdf

Anti-VEGF injections for babies with retinopathy of prematurity (ROP)

Description: Information for parents and carers about anti-VEGF injections. They are a treatment for an eye condition called retinopathy of prematurity
Url: /resources/patient-information/anti-vegf-injections-for-babies-with-retinopathy-of-prematurity-ROP.pdf

Uveitis screening for JIA

Description: This leaflet aims to answer some of the questions you may have about uveitis screening for JIA patients.
Url: /resources/patient-information/uveitis-screening-for-JIA.pdf

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