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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Tongue-tie surgery (for children over 3 months old)

Description: Information about surgery to correct tongue tie (in children from 3 months)
Url: /resources/patient-information/tongue-tie-surgery.pdf

Gastroscopy to check the digestive system

Description: Information about having a gastroscopy.
Url: /resources/patient-information/gastroscopy-to-check-the-digestive-system.pdf

Flexible bronchoscopy in children

Description: This leaflet explains what bronchoscopy is, why it may be necessary and what you can expect if your child has this
Url: /resources/patient-information/flexible-bronchoscopy-in-children.pdf

Colonoscopy to check the large bowel

Description: Information about having a colonoscopy.
Url: /resources/patient-information/colonoscopy-to-check-the-large-bowel.pdf

Oesophageal dilatation to stretch the food pipe

Description: Information about having oesophageal dilatation to stretch the food pipe.
Url: /resources/patient-information/oesophageal-dilatation.pdf

Frequently asked questions

Description: Frequently asked questions about Evelina London's children's cancer services proposal
Url: /about-us/our-plans-to-grow/childrens-cancer-services/frequently-asked-questions-about-the-consultation-on-childrens-cancer-services.aspx

Laparoscopic nephrectomy surgery

Description: Information about your child's laparoscopic nephrectomy surgery.
Url: /resources/patient-information/Laparoscopic-nephrectomy-surgery-kidney-urology.pdf

What do you do, Elsa?

Description: Elsa is a antenatal and newborn screening coordinator
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-elsa.aspx

droopy eyelid surgery

Description: Information about surgery top treat droopy eyelids.
Url: /resources/patient-information/droopy-eyelid-surgery.pdf

Trigger finger or thumb surgery

Description: Information about surgery to release trigger finger or thumb.
Url: /resources/patient-information/trigger-finger-or-thumb-surgery.pdf

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