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“disorder”

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First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study reveals genetic link between childhood brain disorder and Parkinson's disease

Description: Research into a rare neurodevelopment condition has provided important insights into a more common age-related disorder.

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You could also try: confusion (7), complaint (35)

Squints - understanding your child's squint

Description: This leaflet explains about squints, the causes and the consequences.
Url: /resources/patient-information/Understanding-your-childs-squint.pdf

Hirschsprung's disease

Description: This leaflet explains about Hirschprung's disease and the treatment options for your baby.
Url: /resources/patient-information/Hirschsprungs-Disease.pdf

MDT voice clinic

Description: Information about the Multidisciplinary (MDT) voice clinic.
Url: /resources/patient-information/MDT-voice-clinic.pdf

Sickle cell psychology service

Description: This leaflet is about psychological support to children and young people who are living with sickle cell disease (SCD) and thalassaemia
Url: /resources/patient-information/sickle-cell-psychology-service.pdf

Bedwetting (enuresis) in children with sickle cell disease

Description: Information about bedwetting in children with sickle cell disease (SCD), including why it's more common for children with SCD, and what
Url: /resources/patient-information/bedwetting-enuresis-in-children-with-sickle-cell-disease.pdf

What do you do, Siobhán?

Description: Professor Siobhán Carr is a paediatric respiratory consultant at Royal Brompton Hospital and is joint director of the hospital's paediatric cystic
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-siobhan.aspx

What do you do, Sharon?

Description: Sharon is the Lead Midwife for the recently established Southeast London Maternal Medicine Network (MMN)
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-sharon.aspx

Priapism (painful erection) associated with sickle cell disease

Description: This leaflet is for parents and carers of children and young people with priapism. It contains answers to common questions about
Url: /resources/patient-information/priapism-associated-with-sickle-cell-disease.pdf

Hydroxycarbamide for children with sickle cell disease

Description: Information for families about the medication hydroxycarbamide.
Url: /resources/patient-information/hydroxycarbamide.pdf

Bone marrow transplant for sickle cell disease

Description: This leaflet explains about bone marrow transplant for children and young people with sickle cell disease.
Url: /resources/patient-information/BMT-for-sickle-cell-disease-web-friendly.pdf

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