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Nutrition in Cockayne syndrome

Description: Nutritional advice for patients with Cockayne syndrome
Url: /resources/patient-information/nutrition-in-cockayne-syndrome.pdf

Relaxation for your child

Description: Information to help you to manage your child's stress and anxiety.
Url: /resources/patient-information/relaxation-for-your-child.pdf

Baby's life saved after pioneering intensive care treatment

Description: The smallest baby in the UK to receive a pioneering life support treatment has celebrated her first birthday thanks to Evelina
Url: /about-us/news-events/2019-news/20191115-ecmo.aspx

General anaesthetic (for your child)

Description: This leaflet gives information about your child having a general anaesthetic.
Url: /resources/patient-information/your-childs-anaesthetic.pdf

Givinostat Early Access Programme

Description: Information about the Givinostat Early Access Programme at Evelina London, for children with Duchenne muscular dystrophy (MDM).
Url: /resources/patient-information/givinostat-early-access-programme.pdf

REACH service

Description: The Evelina REACH service at Evelina London Children's Hospital is a rehabilitation service for children with hemiplegia (movement difficulties of one
Url: /our-services/hospital/reach/overview.aspx

Hydroxycarbamide for children with sickle cell disease

Description: Information for families about the medication hydroxycarbamide.
Url: /resources/patient-information/hydroxycarbamide.pdf

Removal of accessory digits in babies under LA

Description: This leaflet is about a procedure to remove your baby's extra little fingers or toes (accessory digits) under local anaesthetic.
Url: /resources/patient-information/removing-extra-fingers-or-toes-accessory-digits-under-local-anaesthetic.pdf

Oesophageal dilatation to stretch the food pipe

Description: Information about having oesophageal dilatation to stretch the food pipe.
Url: /resources/patient-information/oesophageal-dilatation.pdf

Constipation health pack

Description: Constipation Health support pack CONSTIPATION | 2 This pack has been created by a team of children’s healt
Url: /resources/our-services/community/community-nursing/Constipation-health-pack.pdf

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