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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Narcolepsy and Kleine-Levin syndrome

Description: We provide specialist services for children with narcolepsy and Kleine-Levin syndrome.
Url: /our-services/hospital/sleep-medicine-department/conditions/narcolepsy-kleine-levin.aspx

What do you do, Ming?

Description: Ming Lim, paediatric neurologist
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-ming.aspx

Deb Pal

Description: Deb Pal is an honorary consultant in neurology at Evelina London, who specialises in epilepsy.
Url: /our-services/hospital/consultants/pal-deb.aspx

Specialised pain relief methods for your child

Description: Information about some of the techniques that are used to provide pain relief (analgesia) for your child during or after surgery
Url: /resources/patient-information/specialised-pain-relief-methods-for-your-child.pdf

Your child's heart surgery

Description: Information for parents of children having heart surgery.
Url: /resources/patient-information/your-childs-heart-surgery.pdf

Michael Absoud

Description: Michael Absoud is a consultant in children's neurodisability, specialising in complex neurodevelopmental disability.
Url: /our-services/hospital/consultants/absoud-michael.aspx

What do you do, Lucy?

Description: Lucy is a clinical research fellow at Evelina London
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-lucy.aspx

Early treatment key for a childhood syndrome linked to COVID-19

Description: A detailed analysis of children with a rare childhood syndrome linked to COVID-19 has shown that early treatment is a
Url: /about-us/news-events/2020-news/20200608-early-treatment-key-for-childhood-syndrome.aspx

Marathon dad thanks Evelina London for saving newborn daughter's life

Description: Tom Golding is celebrating his daughter's first birthday by running the London Marathon to thank Evelina London saving her life.
Url: /about-us/news-events/2019-news/20190423-marathon-dad-thanks-evelina-london.aspx

Ian Lilly

Description: Ian Lilly is an ENT consultant, who specialises in airway problems in children.
Url: /our-services/hospital/consultants/lilly-ian.aspx

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