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“condition”

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Europe's first children's clinic for genetic condition

Description: Evelina London Children's Hospital has launched Europe's first multidisciplinary clinic for children with a rare condition.

Evelina London remains a Centre of Excellence for the treatment of muscle-wasting conditions

Description: Muscular Dystrophy UK has presented the Evelina London neuromuscular team with a Centre of Clinical Excellence award for a second time.

Major advance for detecting brain conditions in babies

Description: Experts at Evelina London Children's Hospital and King’s College London have made major advances in detecting brain conditions in babies.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

Supporting young people with inherited cardiac conditions

Description: A day of talks and workshops took place for young people aged 13-22 with inherited cardiac conditions to help them transition to adult services.

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Nutrition in Cockayne syndrome

Description: Nutritional advice for patients with Cockayne syndrome
Url: /resources/patient-information/nutrition-in-cockayne-syndrome.pdf

Cardiac MRI scan

Description: This leaflet aims to answer your questions about your child's cardiac MRI scan. It explains the benefits, risks, and alternatives, as
Url: /resources/patient-information/cardiac-mri-scan.pdf

Pin site and frame care

Description: Information about how to look after the pin sites and an external fixator frame.
Url: /resources/patient-information/pin-site-and-frame-care.pdf

Preparing your skin before surgery using chlorhexidine gluconate 2% cloths

Description: This leaflet aims to answer your questions about how to prepare your skin before surgery. The purpose of preparing your skin
Url: /resources/patient-information/preparing-your-skin-for-surgery.pdf

Allergies, dating and relationships

Description: Information for teenagers and young people about how allergies can affect dating and relationships.
Url: /resources/patient-information/allergies-dating-and-relationships.pdf

Caudal analgesia (pain relief)

Description: Information about how caudal analgesia is given, the benefits, risks, and side effects, and guidance for when your child leaves hospital
Url: /resources/patient-information/caudal-analgesia.pdf

Cleft palate / cleft gum: orthodontic care

Description: Information leaflet for parents and carers about orthodontic care for their child's cleft palate or gum at Guy's and St Thomas'
Url: /resources/patient-information/your-childs-cleft-palate-gum-orthodontic-care.pdf

What do you do, Liz and Ruth?

Description: Liz and Ruth are paediatric cardiac clinical nurse specialists at Royal Brompton Hospital and Evelina London Children's Hospital
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-liz-and-ruth.aspx

Palliative care transfer to hospice or home

Description: Clinical Guidance Paediatric Critical Care: Palliative Care Transfer to Hospice or Home Summary: This guideline is intended for PICU staff who
Url: /resources/our-services/hospital/south-thames-retrieval-service/palliative-care-transfer-to-hospice-or-home.pdf

Emily Reynold's blog

Description: Emily shares her experience of heart surgery at Evelina London.
Url: /about-us/who-we-are/blog-entries/emily-blog.aspx

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