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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

How a baby girl's life was saved by sniffing her ear wax

Description: A specialist doctor at Evelina London saved a baby girl's life by smelling her earwax to diagnose a rare condition.
Url: /about-us/news-events/2019-news/20190322-life-saved-by-sniffing-ear-wax.aspx

Occupational therapy team

Description: About our specialist hospital-based occupational therapy team.
Url: /our-services/hospital/occupational-therapy/team.aspx

Caudal analgesia (pain relief)

Description: Information about how caudal analgesia is given, the benefits, risks, and side effects, and guidance for when your child leaves hospital
Url: /resources/patient-information/caudal-analgesia.pdf

Vinay Shivamurthy

Description: Vinay Shivamurthy is a consultant rheumatologist at Evelina London Children's Hospital.
Url: /our-services/hospital/consultants/shivamurthy-vinay.aspx

Types of kidney problems we treat

Description: Information about the different kidney conditions we treat at Evelina London.
Url: /our-services/hospital/kidney-services/condition-treatments.aspx

Father taking on Guy's Urban Challenge to say thank you

Description: A dad is celebrating having his daughter home for Father's Day by taking on an ultra triathlon for Evelina London.
Url: /about-us/news-events/2019-news/20190703-father-guys-urban-challenge.aspx

£11.8m to continue research for children, young people and adults

Description: Evelina London, as well as hospitals across Guy's and St Thomas', has been awarded funding to continue to world-leading research
Url: /about-us/news-events/2022-news/20220307-research-for-children-young-people-and-adults.aspx

New drug announced from Evelina London

Description: A new drug is now available to children with a rare genetic condition.
Url: /about-us/news-events/2021-news/20211118-new-drug-announced-from-evelina-london.aspx

Baby receives new potentially life-changing NHS gene therapy at our hospital

Description: Evelina London has become one of four children's hospital in England to provide an exciting, potentially life-saving gene therapy to
Url: /about-us/news-events/2021-news/20210601-life-changing-NHS-gene-therapy-at-our-hospital.aspx

New research into PIMS-TS highlights the need to tackle health inequalities

Description: Experts at Evelina London have been working with other hospitals in London since PIMS-TS was identified to understand more about
Url: /about-us/news-events/2021-news/20210317-ethnicity-and-pims-ts.aspx

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