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“disease”

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An egg-stra special Easter party for children with rare diseases

Description
Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description
Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First trial of its kind for pregnant women with sickle cell disease

Description
Guy's and St Thomas' has assessed the health benefits for pregnant women with sickle cell disease having regular blood transfusions in new trial.

New research explores brain growth in unborn babies with congenital heart disease

Description
Researchers from King's College London and Evelina London have found that congenital heart disease can affect the brain development of unborn babies.

Study reveals genetic link between childhood brain disorder and Parkinson's disease

Description
Research into a rare neurodevelopment condition has provided important insights into a more common age-related disorder.

Study sheds new light on severe infections and inflammatory diseases in children

Description
Around 100 children who were treated in Evelina London Children’s Hospital's paediatric intensive care unit were involved in this important study.

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Inherited white matter disorders referrals

Description
Referral information for patients with suspected or diagnosed inherited white matter disorders (IWMD).
Url
/our-services/hospital/inherited-white-matters-disease/referrals.aspx

Sickle cell and thalassaemia clinics

Description
Information about our sickle cell and thalassaemia clinics, including days, frequency and location.
Url
/our-services/hospital/sickle-cell-and-thalassaemia/clinics.aspx

wired-up

Description
Wired Up is a pacemaker guide for teenagers.
Url
/resources/patient-information/wired-up.pdf

Brain development in babies with congenital heart disease

Description
Information for parents about brain development in babies with heart problems (also called congenital heart disease).
Url
/resources/patient-information/brain-development-in-babies-with-congenital-heart-disease.pdf

Antibiotics, vaccinations and travel advice for your child with sickle cell disease

Description
This leaflet provides help and advice for parents regarding antibiotics, vaccinations and travel for children with sickle cell disease.
Url
/resources/patient-information/antibiotics-vaccinations-and-travel-advice-for-your-child-with-sickle-cell-disease.pdf

Heart services (cardiology)

Description
Our heart (cardiology) services deal with the diagnosis and treatment of all kinds of children's heart problems.
Url
/our-services/hospital/heart-services/overview.aspx

Acute maternal hyperoxygenation testing

Description
Information about a test called acute maternal hyperoxygenation. This test measures your unborn baby's response to oxygen if they have a
Url
/resources/patient-information/acute-maternal-hyperoxygenation-testing.pdf

Kidney service

Description
Our kidney service diagnoses and treats all kinds of children's kidney problems.
Url
/our-services/hospital/kidney-services/overview.aspx

Inherited metabolic diseases team

Description
About the staff who work on our inherited metabolic diseases team.
Url
/our-services/hospital/inherited-metabolic-diseases/team.aspx

Bone marrow transplant for sickle cell disease

Description
This leaflet explains about bone marrow transplant for children and young people with sickle cell disease.
Url
/resources/patient-information/BMT-for-sickle-cell-disease-web-friendly.pdf
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