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Priapism (painful erection) associated with sickle cell disease

Description: This leaflet is for parents and carers of children and young people with priapism. It contains answers to common questions about
Url: /resources/patient-information/priapism-associated-with-sickle-cell-disease.pdf

Looking after yourself

Description: Information about psychological wellbeing for children living with a physical health condition, including strategies to help with coping.
Url: /resources/patient-information/looking-after-yourself.pdf

Neuromuscular referrals

Description: How to refer to the Evelina London neuromuscular service.
Url: /our-services/hospital/neuromuscular-service/referrals.aspx

Specialised pain relief methods for your child

Description: Information about some of the techniques that are used to provide pain relief (analgesia) for your child during or after surgery
Url: /resources/patient-information/specialised-pain-relief-methods-for-your-child.pdf

What do you do, Monica?

Description: Monica is a midwife.
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-monica.aspx

Virtual appointments

Description: Telephone and video appointments You may be invited to have your child ’ s next outpatient appointment over the phone or a
Url: /parents-and-visitors/appointments/virtual-appointments.aspx

Occupational therapy pre-school age resource pack

Description: This pack provides ideas on how to address the most common difficulties that we receive referrals for, and explains our referral
Url: /resources/patient-information/OT-pre-school-age-resource-pack.pdf

Together we cook

Description: A book of nutritious and tasty recipes for families, from the early years community food workers.
Url: /resources/patient-information/Together-we-cook.pdf

Givinostat Early Access Programme

Description: Information about the Givinostat Early Access Programme at Evelina London, for children with Duchenne muscular dystrophy (MDM).
Url: /resources/patient-information/givinostat-early-access-programme.pdf

Staying safe

Description: Information for children who might be having thoughts about suicide or self-harming, including helpline numbers.
Url: /resources/patient-information/staying-safe.pdf

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