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“condition”

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Europe's first children's clinic for genetic condition

Description: Evelina London Children's Hospital has launched Europe's first multidisciplinary clinic for children with a rare condition.

Evelina London remains a Centre of Excellence for the treatment of muscle-wasting conditions

Description: Muscular Dystrophy UK has presented the Evelina London neuromuscular team with a Centre of Clinical Excellence award for a second time.

Major advance for detecting brain conditions in babies

Description: Experts at Evelina London Children's Hospital and King’s College London have made major advances in detecting brain conditions in babies.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

Supporting young people with inherited cardiac conditions

Description: A day of talks and workshops took place for young people aged 13-22 with inherited cardiac conditions to help them transition to adult services.

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Wheelchair hire in London

Description: This leaflet gives advice about measuring for a wheelchair and where you can hire them from in London.
Url: /resources/patient-information/wheelchair-hire-in-London.pdf

Paediatric outpatient parenteral antibiotic therapy (p-OPAT) service

Description: Information about the paediatric outpatient parenteral antibiotic therapy (p-OPAT) service. It explains how the service works and what to do
Url: /resources/patient-information/p-opat-service.pdf

Videofluoroscopy (inpatients)

Description: Information about having a videofluoroscopy as an inpatient.
Url: /resources/patient-information/Videofluoroscopy-inpatient.pdf

Water-soluble swallow/meal examination

Description: This leaflet will answer some of your questions about your child having a water-soluble swallow/meal examination.
Url: /resources/patient-information/your-childs-water-soluble-swallow-meal-examination.pdf

Barium follow-through examination

Description: The aim of this leaflet is to help answer some of the questions you may have about your child having a
Url: /resources/patient-information/barium-follow-through-examination.pdf

Barium enema

Description: The aim of this leaflet is to help answer some of the questions you may have about your child having a
Url: /resources/patient-information/barium-enema.pdf

Cardiac OT for your baby's development

Description: Information for parents of babies who have had cardiac surgery.
Url: /resources/patient-information/cardiac-OT-for-your-babys-development-web.pdf

Routine EEG

Description: This leaflet explains more about routine EEG.
Url: /resources/patient-information/routine-EEG.pdf

Prolonged daytime EEG telemetry

Description: This leaflet explains more about prolonged daytime EEG telemetry.
Url: /resources/patient-information/prolonged-daytime-EEG-telemetry.pdf

Admissions FAQs

Description: This leaflet is a list of FAQs that parents have told us they would like to have answered before their child's
Url: /resources/patient-information/paediatric-admissions-FAQs.pdf

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