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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Heart services (cardiology)

Description: Our heart (cardiology) services deal with the diagnosis and treatment of all kinds of children's heart problems.
Url: /our-services/hospital/heart-services/overview.aspx

How Evelina London came to be the future location of children's cancer services

Description: Information about how Evelina London was chosen as the location of future children's cancer services.
Url: /about-us/our-plans-to-grow/childrens-cancer-services/background.aspx

Occupational therapy clinics

Description: About our occupational therapy clinics, including days, frequency and location.
Url: /our-services/hospital/occupational-therapy/clinics.aspx

Ania Koziell

Description: Ania Koziell is consultant nephrologist and senior clinical lecturer, specialising in children's kidney conditions.
Url: /our-services/hospital/consultants/koziell-ania.aspx

Rahul Singh

Description: Rahul Singh is a consultant paediatric neurologist and neonatal neurologist at Evelina London.
Url: /our-services/hospital/consultants/singh-rahul.aspx

Paediatric multisystem inflammatory syndrome

Description: Paediatric multisystem inflammatory syndrome (called PIMS-TS or PIMS for short) is a rare condition thought to be triggered by COVID
Url: /our-services/hospital/paediatric-multisystem-inflammatory-syndrome/overview.aspx

ChatHealth

Description: ChatHealth is a confidential school nurse messaging service for young people aged 11-19.
Url: /our-services/community/school-nursing-service/chat-health.aspx

Dental clinics

Description: Our children's dental service runs and takes part in a number of clinics for children with dental problems.
Url: /our-services/hospital/dental/clinics.aspx

Christmas carols by Royal invitation

Description: Staff and patients at Evelina London Children's Hospital attended a festive carol service at Westminster Abbey hosted by The Princess of
Url: /about-us/news-events/2022-news/20221220-christmas-carols-by-royal-invitation.aspx

Group A Streptococcus: What to look out for

Description: Parents and carers may be concerned by the news reports about Group A streptococcus (GAS).
Url: /about-us/news-events/2022-news/20221206-group-a-streptococcus.aspx

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