22q11.2 service referrals

How to make a referral

Our service is for children and young people up to 16 years old with a diagnosis of 22q11.2 deletion or duplication syndrome. We accept referrals from primary care or other paediatricians.

A referral can be made via the electronic referral system (e-RS).

We accept referrals from all hospitals within the South Thames Paediatric Network.


We do not currently have a formal transition service as there is no specific 22q clinic for adults.

We advise that future care is coordinated by the general practitioner in liaison with other involved clinical specialties. Read guidance on the care needs of adults with 22q11.2

NHS GP referrals

All NHS GP referrals must be submitted using the NHS e-Referral Service (e-RS). Referrals sent by email or post from NHS GPs will not be processed. 


22q11.2 service
General paediatric team
3rd Floor
Becket House
Westminster Bridge Road
London SE1 7EH

Tel: 020 7188 7188 (ext 58194)