If your child has been invited for a face-to-face appointment or procedure, it’s important you still come unless you hear otherwise.
To help keep everyone safe, only one parent or carer can attend. No other family or friends can visit.
See all our information about COVID-19, including steps we are taking to keep you safe.

22q11.2 service

Coronavirus (COVID-19) update

We have not seen an increase in coronavirus (COVID-19) infections or complications in our 22q11 patients. Very few of our 22q11 patients need to shield and we will have discussed this with you directly if this was necessary.

When the COVID-19 vaccine is approved for children, we would recommend that your child receives it as there are no implications for 22q11 patients.

Overview

This service aims to make sure every child and young person with 22q11 deletion or duplication syndrome receives appropriate care and long term follow up. We are proud to be one of a small number of teams in the UK that provide this service.  

We see children at diagnosis and then at important milestones in their childhood, including transitioning to adult health care. This is important because the needs of children and young people with 22q11 deletion and duplication syndromes can change over time.

If your child has recently received a diagnosis of 22q11.2 deletion or duplication syndrome you may have a lot of questions about what this will mean for them.  We will do our best to answer these questions when we meet.

The 22q11.2 service is led by general paediatrics and immunology. We work closely with other Evelina London specialties, including the cardiology, cleft and ear, nose and throat (ENT) teams. We also work with Evelina London's psychiatry, psychology, dentistry and genetic teams.

Getting here

Our clinics are in Ocean.

Level 0 - Ocean
Evelina London Children's Hospital
Westminster Bridge Road
London SE1 7EH

From Westminster and Waterloo stations around 10 minute walk.

Contacts

Email: 22q@gstt.nhs.co.uk 

Clinical nurse specialist mobile number: 07780 227 496 

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