Transition to adult inherited metabolic diseases service

The move from the children's to the adult inherited metabolic diseases service is a gradual process. It's important that you're involved, prepared and understand the changes, which are likely to happen as you approach the age of 16.

When does transition start?

From the age of 14, you will be slowly introduced to the adult inherited metabolic disease service.

Where should I go?

The transition clinics take place at Evelina London.

You will have 4 appointments over the 2-year period when you are 14 to 16 years old. At your last appointment you'll be shown where the adult inherited metabolic diseases clinic is, at Gassiot House, St Thomas' Hospital.

Who will I see?

At your first 2 clinic appointments you'll see staff from the children's inherited metabolic diseases team. At your last 2 appointments, you'll see both the children's and adult teams. 

What happens at the appointments?

When the transition process begins, we'll work with you to set some goals that you want to achieve. At each appointment we'll talk through these goals with you, and how you think you're doing.

If you have any anxieties or questions about the transition process, you can also talk about these at your appointments.

During your first 2 clinic visits, your parent or guardian will be invited to come along to the appointment with you, but you'll also be given the opportunity to see us on your own. During your last 2 visits, we'll ask to see you without your parent or carer. This is to help you become more independent.

Further information

For more information about transition, please download our leaflet The transition process: what you need to know (PDF 89KB).

For more information about the adult services, visit the Guy's and St Thomas' website.

Transition contacts

Inherited metabolic dietitians

Phone: 020 7188 4008 or 020 7188 9611

Inherited metabolic nurse specialists

Phone: 020 7188 0855 or 020 7188 0850

Inherited metabolic secretaries

Phone: 020 7188 0848 or 020 7188 4004