Evelina London Children’s Hospital and Great Ormond Street Hospital have been jointly designated to host the paediatric inherited white matter disease (IWMD) centre for the South of England.
Dr Rahul Singh and Dr Cheryl Hemingway are the joint leads for this service. This service will model on the multidisciplinary care provided by metabolic consultants, neuro-radiologists, geneticists, neuropsychologist, genetic scientists, specialist nurses and a service coordinator.
For transition of patients to the adult IWMD service we will be working with the IWMD service team based at The National Hospital for Neurology and Neurosurgery, Queen Square. We are currently in the process of national mobilisation and our clinical service have started. The new service will build on the previous regional services that have been available for patients with confirmed or suspected IWMDs.