Please bear with us as we upgrade our patient electronic health record system across our hospitals and community services from 5 October.
Strike action is taking place in October. We'll contact you directly if you or your child's appointment is affected.


Where do appointments take place?

You will get an appointment to one of the two centres. 

How to change or cancel your appointment

Please contact the paediatrics neurology team to reschedule.

For apointments at Great Ormond Street Hospital please email or call 020 7405 9200 (ext 0511) to cancel.

What to bring to your appointment

You and your child will be invited to a face-to-face or virtual appointment. Please bring all medical information, any medication you are on and the names of your child's main care team.

What to expect at your appointment

We will let you know whether your appointment will be face-to-face or virtual. It will be with either Evelina London Children's Hospital or Great Ormond Street Hospital. 

A virtual clinic session may last for up to 60 mins or more and you may see many people in the clinic.

A face-to-face session will last approximately 60 mins and will usually be attended by the lead clinician and other members to the clinical team. Some may choose to attend virtually. 


Our clinic takes place on the first Thursday of the month and alternates between Evelina London Children's Hospital or Great Ormond Street Hospital. The clinic is run by Dr Rahul Singh and Dr Cheryl Hemingway. 

Telephone the Evelina London clinic: 020 7188 7188 (ext 84001)

Telephone the Great Ormond Street Hospital clinic: 020 7405 9200 (ext 0511)

Useful links

Information about inherited white matters disease on the NHS website
Alex the Leukodystrophy Charity 
Metabolic Support UK
Evelina London Children's Charity
Guy's and St Thomas' Charity