Inherited white matter disorders appointments

inherited white matter disorders

Where do appointments take place?

Your appointment will be face-to-face or virtual. 

If your appointment is face-to-face it will be at Great Ormond Street Hospital or Evelina London.

How to change or cancel your appointment

Please contact the children's neurology team to reschedule.

For apointments at Great Ormond Street Hospital please:

What to bring to your appointment

Please bring:

  • all medical information
  • any medication you are on
  • the names of your child's main care team

What to expect at your appointment

Your virtual appointment may last over 60 minutes and you may see many people in the clinic.

Your face-to-face appointment will last about 60 minutes. You'll usually see the lead clinician and other members to the clinical team. You may see some member of the team virtually.


Our clinic takes place on the first Thursday of the month and alternates between Evelina London Children's Hospital and Great Ormond Street Hospital.

The clinic is run by Rahul Singh and Cheryl Hemingway. 

Telephone the Evelina London clinic: 020 7188 7188 4001

Telephone the Great Ormond Street Hospital clinic: 020 7405 9200 ext. 0511

Useful links

Information about inherited white matters disease on the NHS website
Alex the Leukodystrophy Charity 
Metabolic Support UK
Evelina London Children's Charity
Guy's and St Thomas' Charity