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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Be inspired by a teacher who ran the marathon for children's critical care service

Description: Are you considering getting fit and fundraising for us as one of your New Year resolutions this year?
Url: /about-us/news-events/2022-news/20221228-be-inspired-by-teacher-who-ran-marathon.aspx

Marathon mum to thank Evelina London for saving son's life

Description: A mother of three is running the London Marathon to thank Evelina London for saving her son's life after he was admitte
Url: /about-us/news-events/2022-news/20220930-marathon-mum-thanks-evelina-london.aspx

Schoolboy wins medals at national competition after kidney transplant

Description: A schoolboy won two medals at the British Transplant Games after receiving a kidney transplant at Evelina London Children's Hospital.
Url: /about-us/news-events/2022-news/20220815-schoolboy-wins-medals-after-kidney-transplant.aspx

Unique child stroke service celebrates second birthday

Description: Emily Burgess was only three-years-old when she had a stroke. Read about how the Child Stroke Project, a unique
Url: /about-us/news-events/2015-news/20150814-stroke-service.aspx

Running with heart

Description: A father is running the London Marathon with our heart team to thank them for saving his son's life.
Url: /about-us/news-events/2019-news/20190416-london-marathon-heart-team.aspx

Neurology world first at Evelina London

Description: A two-year-old girl at Evelina London has become the youngest child in the world to undergo deep brain stimulation
Url: /about-us/news-events/2019-news/20190709-world-first-neurology-team.aspx

Konnie Huq introduces her children's book

Description: Konnie Huq has just released her first children's book 'Cookie and the Most Annoying Boy in the World' and came to
Url: /about-us/news-events/2019-news/20190813-konnie-huq-introduces-book.aspx

How we're run

Description: Information about the Board and executive committee of Evelina London Women's and Children's Clinical Group.
Url: /about-us/who-we-are/how-were-run.aspx

What do you do, Shazia?

Description: Shazia is a paediatric consultant nephrologist (kidney specialist) at Evelina London
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-shazia.aspx

Care and management of a plaster or fibreglass cast

Description: How to look after your child's cast.
Url: /resources/patient-information/care-and-management-of-a-plaster-or-fibreglass-cast.pdf

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