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“disease”

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An egg-stra special Easter party for children with rare diseases

Description
Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description
Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First trial of its kind for pregnant women with sickle cell disease

Description
Guy's and St Thomas' has assessed the health benefits for pregnant women with sickle cell disease having regular blood transfusions in new trial.

New research explores brain growth in unborn babies with congenital heart disease

Description
Researchers from King's College London and Evelina London have found that congenital heart disease can affect the brain development of unborn babies.

Study reveals genetic link between childhood brain disorder and Parkinson's disease

Description
Research into a rare neurodevelopment condition has provided important insights into a more common age-related disorder.

Study sheds new light on severe infections and inflammatory diseases in children

Description
Around 100 children who were treated in Evelina London Children’s Hospital's paediatric intensive care unit were involved in this important study.

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Research by Evelina London might help to prevent coeliac disease

Description
A study from Evelina London has suggested a new area of research to prevent coeliac disease.
Url
/about-us/news-events/2020-news/20200929-study-help-prevent-coeliac-disease.aspx

Infectious diseases patient information leaflets

Description
A list of infectious diseases patient information leaflets for children, parents and carers.
Url
/our-services/hospital/infectious-diseases/patient-leaflets.aspx

Your appointment at the Batten disease clinic

Description
Information about our Batten disease clinic, including times and location.
Url
/our-services/hospital/batten-clinic/patients.aspx

Hirschsprung's disease

Description
This leaflet explains about Hirschprung's disease and the treatment options for your baby.
Url
/resources/patient-information/Hirschsprungs-Disease.pdf

Batten disease service referrals

Description
How to refer to our Batten disease service.
Url
/our-services/hospital/batten-clinic/referrals.aspx

Inherited metabolic diseases clinics

Description
Information about our inherited metabolic diseases (IMD) clinics, including times and locations.
Url
/our-services/hospital/inherited-metabolic-diseases/clinics.aspx

Your child's appointment with the inherited metabolic diseases service

Description
What to expect from your child's appointment with the inherited metabolic diseases (IMD) centre.
Url
/our-services/hospital/inherited-metabolic-diseases/patients.aspx

Bedwetting (enuresis) in children with sickle cell disease

Description
Information about bedwetting in children with sickle cell disease (SCD), including why it's more common for children with SCD, and what
Url
/resources/patient-information/bedwetting-enuresis-in-children-with-sickle-cell-disease.pdf

Gastroenterology and nutrition service

Description
Our gastroenterology and nutrition service sees children with conditions affecting the gut, bowel and pancreas.
Url
/our-services/hospital/gastroenterology-and-nutrition-service/overview.aspx

Prenatal diagnosis of CHD

Description
This leaflet gives more information about your baby's heart disease.
Url
/resources/patient-information/prenatal-diagnosis-of-CHD.pdf
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