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“disease”

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An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First trial of its kind for pregnant women with sickle cell disease

Description: Guy's and St Thomas' has assessed the health benefits for pregnant women with sickle cell disease having regular blood transfusions in new trial.

New research explores brain growth in unborn babies with congenital heart disease

Description: Researchers from King's College London and Evelina London have found that congenital heart disease can affect the brain development of unborn babies.

Study reveals genetic link between childhood brain disorder and Parkinson's disease

Description: Research into a rare neurodevelopment condition has provided important insights into a more common age-related disorder.

Study sheds new light on severe infections and inflammatory diseases in children

Description: Around 100 children who were treated in Evelina London Children’s Hospital's paediatric intensive care unit were involved in this important study.

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You could also try: illness (87), sickness (28), bug (3), virus (24), infection (196)

Kawasaki disease

Description: This leaflet gives more information about Kawasaki disease, including symptoms, tests and treatments.
Url: /resources/patient-information/Kawasaki-disease-web.pdf

Hydroxycarbamide for children with sickle cell disease

Description: Information for families about the medication hydroxycarbamide.
Url: /resources/patient-information/hydroxycarbamide.pdf

Sickle cell disease and thalassaemia community service

Description: We provide community services for adults, young people and children with sickle cell disease and thalassaemia in Lambeth, Southwark and Lewisham
Url: /our-services/community/community-sickle-cell/overview.aspx

Transition to adult inherited metabolic diseases service

Description: Information on the transition process for young adults who are moving from the children's to the adult inherited metabolic disease service
Url: /our-services/hospital/inherited-metabolic-diseases/transition.aspx

Our Lifelong Congenital Heart Disease (CHD) Network

Description: The Lifelong Congenital Heart Disease (CHD) Network brings together NHS professionals working across London, Kent, Essex, Suffolk, Surrey, Sussex and further
Url: /our-services/hospital/heart-services/our-congenital-heart-disease-network.aspx

Paediatric multisystem inflammatory syndrome and Kawasaki disease service referrals

Description: How to refer to our paediatric multisystem inflammatory syndrome and Kawasaki disease service
Url: /our-services/hospital/paediatric-multisystem-inflammatory-syndrome/referrals.aspx

Inherited metabolic diseases – transition to adult services

Description: Information on the transition process for young adults who are moving from the children's to the adult inherited metabolic disease service
Url: /resources/patient-information/transition-process-for-inherited-metabolic-diseases.pdf

Priapism (painful erection) associated with sickle cell disease

Description: This leaflet is for parents and carers of children and young people with priapism. It contains answers to common questions about
Url: /resources/patient-information/priapism-associated-with-sickle-cell-disease.pdf

Evelina London patient raises awareness of sickle cell disease

Description: Tiana Francis, a seven-year-old with sickle cell disease, and her mother have made an important call for new blood
Url: /about-us/news-events/2019-news/20191008-evelina-london-patient-raises-awareness-of-sickle-cell.aspx

Your appointment with the sickle cell disease and thalassaemia community service

Description: About accessing the sickle cell and thalassaemia community nursing service, covering Lambeth, Southwark and Lewisham.
Url: /our-services/community/community-sickle-cell/patients.aspx

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