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“rare”

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"Miracle Millie" celebrates first year since rare heart operation

Description: 12-year-old Millie has celebrated a year since becoming the first in the UK with her complex condition to have a rare heart surgery at Evelina London.

An egg-stra special Easter party for children with rare diseases

Description: Children with rare metabolic conditions were treated to an Easter party with a twist recently at Evelina London’s Ronald McDonald House.

Celebrating our services on Rare Diseases Day

Description: Evelina London is experienced in looking after some of the most complex children requiring care across multiple specialities.

First UK recruit for clinical trial treating rare disorder

Description: Evelina London has recruited the first child in the UK for a clinical research study looking at a treatment for a rare inflammatory condition.

New specialist service for patients with rare neurological conditions

Description: Evelina London Children’s Hospital will host a specialist service for patients with rare genetic conditions so they can receive earlier diagnosis.

Specialist nurses bring together families of children with rare neurological disorders

Description: Families from across England came together for a special support day dedicated to children with paediatric relapsing demyelinating disorders.

Study investigates the role of genetics in rare post-COVID condition

Description: A study has highlighted how rare variants of a gene that regulates the gut lining may increase the risk by up to 4 times of MIS-C.

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You could also try: uncommon (11), unusual (47), exceptional (14), atypical (3), extraordinary (5), odd (3), infrequent (3)

Family say thank you to Evelina London's Ronald McDonald House

Description: Just a few minutes' walk from our children's hospital Ronald McDonald House Evelina London is a 59 bedroom 'home away from
Url: /about-us/news-events/2021-news/20210702-family-grateful-for-ronald-mcdonald-house.aspx

Evelina London continues to grow

Description: We've begun the next phase of development plans to help meet the growing demand for our services.
Url: /about-us/news-events/2020-news/20200708-evelina-london-continues-to-grow.aspx

PIMS information for schools

Description: Information for schools about PIMS (PIMS-TS).
Url: /resources/patient-information/covid19/PIMS-information-for-schools.pdf

Complex care journey guide - Compass service

Description: Information about our Compass service that help parents and children cope with complex conditions.
Url: /resources/patient-information/complex-care-journey-guide.pdf

What do you do, Davina?

Description: Davina is a consultant anaesthetist with a special interest in congenital cardiac anaesthesia and Head of Service for Evelina London theatres
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-davina.aspx

What do you do, Ashira?

Description: Ashira is an asthma clinical nurse specialist
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-ashira.aspx

Munkh Batsaikhan's blog

Description: Munkh Batsaikhan's blog - written in celebration of our 150th anniversary.
Url: /about-us/who-we-are/blog-entries/20190702-munkh-blog.aspx

What do you do, Jennifer?

Description: Jennifer is an educational psychologist and clinical neuropsychologist at Evelina London.
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-jennifer.aspx

Melita Irving

Description: Melita Irving is a clinical geneticist and member of the endocrinology team at Evelina London.
Url: /our-services/hospital/consultants/irving-melita.aspx

What do you do, Trupti?

Description: Trupti works
Url: /about-us/who-we-are/history/a-history-of-care/what-do-you-do/what-do-you-do-trupti.aspx

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