If your child is referred to us, we will contact you directly.
Before your appointment
We will ask you to complete a questionnaire, and will give you details of the first appointment.
The assessment process
The appointment may may take place in the neurology clinic or on Savannah Ward, both of which are in Evelina London.
Our team of experts will then begin the assessment process to see if your child is suitable for the intrathecal baclofen pump or deep brain stimulator system. We look at things like your child's level of motor skills, disability, quality of life and independence skills. We may also need to carry out further tests, such as MRI scans or genetic testing.
We will work closely with you and your child throughout the assessment process to set clear goals, and talk through the implications of surgery.
If your child has surgery
If it's decided to go ahead with neurosurgery for your child, they will have the operation at King's College Hospital.
The day after their surgery, they will be transferred back to Evelina London to recover on Savannah Ward.
After the operation
We aim to see your child about six times the first year after their operation, and four times the following year, although this can vary depending on your child's condition.
We work closely with your local healthcare services and therapists to make sure that you and your family get the help and support you need.