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Rheumatology patient leaflets and useful websites

Patient leaflets

Juvenile idiopathic arthritis

Where to find information about Juvenile Idiopathic Arthritis (JIA) - a guide for young people

Transition in the rheumatology service

This leaflet gives information on the transition from the Evelina rheumatology service to the adult one, including the one-stop, adolescent and adult clinics.
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Useful websites

Information sheets/booklets

Arthritis Research UK
Online arthritis information from Arthritis Research UK, for both people with arthritisand medical professionals.

Rheumatology leaflets in multiple languages produced in collaboration with the Pediatric Rheumatology International Trials Organisation (PRINTO).

Arthritis Care
This charity provides a range of information to help people manage their arthritis. You can browse for information by subject (treatments, lifestyle, parenting) or type (booklet, course, video).

Medicines for Children
Information leaflets and general advice about giving medicines to your child.

Support and advice

Children's Chronic Arthritis Association (CCAA)
This charity provides a support network for children with arthritis and their families. They have set up a network of family contacts and provide recreational opportunities for children with juvenile idiopathic arthritis and their families, such as family weekends and other outings.

Centre for Adolescent Rheumatology
Arthritis support and advice from Arthritis UK for young people and teenagers.

Arthritis Care – young people
Information and support on advice for young people from the charity Arthritis Care, including discussion forums and a free, confidential helpline.

Myositis Support Group
A charity providing information and support to those affected by conditions including juvenile dermatomyositis and polymyositis.

National Ankylosing Spondylitis Society (NASS) 
A UK charity supporting people with ankylosing spondylitis, their families and their medical teams. 

St Thomas' Lupus Trust
Online resource and community providing information for medical professionals and patients and their families.

Lupus UK
Advice and information for lupus patients and their families, including a regional support group finder.

Medical information

Information on rheumatological conditions in multiple languages produced in collaboration with the Pediatric Rheumatology International Trials Organisation (PRINTO).

British Society Paediatric and Adolescent Rheumatology Society (BSPAR) – clinical guidelines
Documents around rheumatological conditions that health professionals might find useful in clinical practice.

Medicines for Children
Practical and reliable advice about giving medicine to your child.