MenCap provides support for people with learning disability
The Challenging Behaviour Foundation is a UK charity specifically focussed on the needs of children, young people and adults with severe learning disabilities whose behaviour may be described as challenging, and their families.
Contact a Family is a national charity that exists to support the families of disabled children whatever their condition or disability. The website has information on many conditions in the ‘A-Z medical conditions’ section.
Scope is a charity that supports disabled people and their families in England and Wales.
Hemi Help is a charity providing support and information to people with hemiplegia.
Family Fund provides a wide range of grants to families raising a disabled or seriously ill child, or young adult on a low income.
Cerebra offers guides and factsheets to help families of children with brain conditions.
Down's Syndrome Association is helping people with Down's syndrome to live full and rewarding lives.
Transition to adult services for young people with learning disabilities
GP annual health check
All young people with a learning disability should have a yearly review with their GP to check and support their health needs from the age of 14 years. This helps your GP get to know you well before they take over from us when you’re 18 years old.
Making decisions for young people
Before age 16: parents or carers with parental responsibility make decisions for the child.
From age 16: The Mental Capacity Act applies.
Young people should be supported to make their own decisions whenever possible. If they cannot decide for themselves, other people must make choices in their best interests. Family often make these decisions, but sometimes others (like doctors) must decide. For medical issues, the doctor makes the decision.
Deputyship: Parents or carers can apply for a deputyship. This means they can continue making decisions about education, health, social care, or money after their child turns 16.
For more information, please see: